|
Resources For
Information On the Internet
Recommended Books
Resources For Supplies
This lymphedema resources
and information page and the articles and links to other resources on the
internet are provided as citations and aids to help you identify and locate
information and other internet resources that may be of interest to you
regarding lymphedema and/or breast cancer, and are not intended to state or imply that the
StepUp-SpeakOut.Org group is affiliated or associated with, agrees with the site
contents, or is legally authorized to use any trade name, registered trademark,
logo, legal or official seal or copyrighted symbol that may be reflected in the
links.
You should not act or rely on any information from any World Wide Web site
without seeking the advice of your own physician or healthcare provider.
Lymphedema requires appropriate evaluation, treatment and education by a
certified lymphedema
therapist.
We do not endorse any specific information contained in these links, but merely
offer them as publicly available information.
We are proud to have our
StepUp-SpeakOut web site receive certification from the
HonCode on
the Net from the Health On the Net Foundation.
Resources For
Information On the Internet
Medical References on our Site
SHARE Self-help for women affected by
breast or ovarian cancer.
Lymphormation
From the Journal of Lymphedema
(ALFP) American Lymphedema
Framework Project
ALFP - American Lymphedema Framework Project
(NLN) National
Lymphedema Network
www.lymphnet.org
LymphNotes
www.lymphnotes.com
Lymphedema
Community
http://lymphedemacommunity.com
Lymphedema Today
http://acols.com/lymphedematoday/
The North American Lymphedema Education Association (NALEA)
Its member schools
include the following:
LymphedemaPeople
www.lymphedemapeople.com
The Lebed Method
www.focusonhealing.net
The Northwest
Lymphedema Center
www.nwlymphedemacenter.org
Lymphatic Research Foundation
www.lymphaticresearch.org
Stanford Center for
Lymphatic and Venous Disorders
http://www.stanfordhospital.com/clinicsmedServices/COE/heart/DiseasesConditions/lymphaticvenous.html
American College of Oncology
http://www.asco.org/
UKLymph.com
http://www.uklymph.com/forums/index.php
Aussie Breast Cancer Forum
http://www.bcaus.org.au/forum/index.php
Lymphovenous
Canada
http://www.lymphovenous-canada.ca/
Lymphoedema Association of Australia
http://www.lymphoedema.org.au
International Society of Lymphology
http://www.u.arizona.edu/~witte/ISL.htm
Lymphedema
Association of Ontario
http://lymphontario.org
Lymphedema
Resources.Org
http://www.lymphedemaresources.org
Rehabilitation
Associates of Naples
www.rehabnaples.com
Women's
Health and Cancer Rights Act Information
http://www.cms.hhs.gov/HealthInsReformforConsume/06_TheWomen'sHealthandCancerRightsAct.asp#TopOfPage
No
Surrender Breast Cancer Foundation
http://www.nosurrenderbreastcancerhelp.com/
Breast
Reconstruction.org
http://www.breastreconstruction.org
Breast
Free.org
http://www.breastfree.org
Fitness After Breast
Cancer
http://www.recovercisesforwellness.com
Medicare and Disability Information
top of page
Recommended
Books
Lymphedema: A Breast Cancer Patient's Guide to
Prevention and Healing, by
Jeannie Burt,
Gwen White
From the Author
This new edition provides updates on the latest research
and information on the cutting-edge products and techniques developed for
treating lymphedema. Since excess weight has been found to play a role,
information about obesity and weight management is provided, and the nutrition
and exercise sections have been expanded. Other new sections cover naturopathy,
acupuncture, Chinese herbal medicine, and new alternative therapies currently
being tested.
About the Author
Written by a practitioner and her patient.
Gwen White, P.T., has been a practicing physical
therapist for 30 years, and specializes in the treatment of women with
lymphedema. She lives in Portland, Oregon.
Jeannie Burt, a former lymphedema sufferer, has led an
exercise program for women with the condition. A human resources consultant, she
is the author of several previously published works of nonfiction. She lives in
Portland, Oregon.
Reviews
"...this book’s strength lies not only in its content, but
in the spirit of hope it engenders." -- MAMM Magazine
"…focused on patient education and empowerment while compiling a wide range of
information and expertise…an excellent resource to clinicians." -- Physical
Therapy (American Physical Therapy Association's official publication)
"…incredibly well-written…exactly the information patients want. The low cost
makes this information accessible to many people and a real find." --
Oncology Nursing Forum
Lymphedema:
Understanding and Managing Lymphedema After Cancer Treatment: American Cancer
Society
If you have had cancer treatment, you may be at risk
for lymphedema, a buildup of fluid that results in swelling of the arm or leg
and other potential complications. Created with the guidance of experts in
nursing, oncology, research, and lymphedema care, this up-to-date, practical
handbook helps you and your caregiver understand and manage every aspect of
lymphedema. Topics include:
.
-
Current recommendations about day-to-day precautions, diagnosis, and
treatment.
-
Early symptoms and self-monitoring that can be essential to early diagnosis.
-
Methods of coping with emotional stresses and physical challenges.
-
Practical issues related to work, insurance, and finding and paying for
treatment
Lymphedema: Understanding and Managing
Lymphedema After Cancer Treatment:
offers the information and support you need to cope. You will benefit from this
solid and sympathetic discussion of an often-misunderstood and. overlooked
condition.
"Lymphedema can be managed if you understand your risks,
take proper precautions, and receive treatment from knowledgeable and qualified
professionals. This outstanding resource from the experts at the American Cancer
Society can help you do just that."
--From the Foreword by Sam Donaldson, ABC News Correspondent, treated for
lymphedema of the leg
Voices of Lymphedema
is an exciting book written by patients, therapists, and
others who know lymphedema best. As one of the enthusiastic reviewers described
it, "This is a must read!" For more information and reviews (including
those from the National Lymphedema Network (NLN), plus ordering information
click here.
Living Well with
Lymphedema by A. Ehrlich, A. Vinjé-Harrewijn PT,
CLT-LANA, and E. McMahon PhD. “The most
comprehensive lymphedema book on the market. Wonderful for patients and those at
risk. So many sources tell lymphedema patients what they can’t do. This book
encourages us in what we can do!" Tracy Novak
Lymphedema Caregiver’s
Guide Arranging
and Providing Home Care, by M.K. Kearse, PT, CLT-LANA; E. McMahon, PhD; A.
Ehrlich, MA
This book is addressed to both
professionals and family members who assist with the care of
patients with lymphedema. Sections address such aspects as
understanding lymphedema, learning the entire range of care
skills, arranging for care, managing supplies and equipment, and
avoiding burn-out. Included are detailed illustrations of the
lymph system, several pages of resource lists, and copies of
forms for planning and organizing all aspects of lymphedema
care. At around 450 pages this is a ponderous amount of reading
material, but its careful organization allows for quick,
efficient reference.
Thriving
After Breast Cancer, Essential Healing Exercises for Body and Mind
by Sherry Lebed Davis, Stephanie Gunning, Ann
Campbell, and David Ehlert
Reviews
"It is critical for women to start moving right away after
treatment and that they continue moving if they are to maintain their mobility.
Sherry Davis' approach will make a big difference in the quality of life of
women after breast cancer."
--Susan M. Love, M.D., author of Dr. Susan Love's Breast Book
"This book and the program it describes should assist many as they strive for
the ultimate goal of therapy--a full, healthful, and active life."
--Clifford Hudis, M.D., Chief, Breast Cancer Medicine Service Memorial
Sloan-Kettering Cancer Center
"Women may find her [Davis'] focus on restoring both flexibility and femininity
to be just what they're looking for."
--Publisher's Weekly -- Review
"It is critical for women to start moving right away after treatment and that
they continue moving if they are to maintain their mobility. Sherry Davis'
approach will make a big difference in the quality of life of women after breast
cancer."
--Susan M. Love, M.D., author of Dr. Susan Love's Breast Book
"This book and the program it describes should assist many as they strive for
the ultimate goal of therapy--a full, healthful, and active life."
--Clifford Hudis, M.D., Chief, Breast Cancer Medicine Service Memorial
Sloan-Kettering Cancer Center
"Women may find her [Davis'] focus on restoring both flexibility and femininity
to be just what they're looking for."
--Publisher's Weekly
"It is critical for women to start moving right away after treatment and that
they continue moving if they are to maintain their mobility. Sherry Davis'
approach will make a big difference in the quality of life of women after breast
cancer."
--Susan M. Love, M.D., author of Dr. Susan Love's Breast Book
"This book and the program it describes should assist many as they strive for
the ultimate goal of therapy--a full, healthful, and active life."
--Clifford Hudis, M.D., Chief, Breast Cancer Medicine Service Memorial
Sloan-Kettering Cancer Center
"Women may find her [Davis'] focus on restoring both flexibility and femininity
to be just what they're looking for."
--Publisher's Weekly
Handwriting for
Heros
Here's a new workbook
developed by two experienced Occupational
and Hand Therapists to help you learn to
write with your non-dominant hand.
Handwriting for Heroes: Learn to Write with
Your Non-dominant Hand in Six Weeks
is an encouraging but
no-nonsense program for those who are
serious about switching dominant sides,
whether because of a
wrapped arm or
RIBP.
Daily and weekly practice assignments, tips
for assuring success, and plenty of
encouraging words are offered in a framework
of adult interests and sensibilities – no
more first-grade writing tablets and
kid-level practice sentences! The workbook
is well-organized, clear, and comprehensive.
The authors even invite the user to
visit their website
to ask questions
or report on their progress. It should have
been spiral bound for ease in laying it
flat, but we tried bending the workbook's
spine and that does keep it from becoming a
frustration.
 100
Questions & Answers
about Lymphedema,
by Nicole L.Stout,
MPT,CLT-LANA, Paula
J. Stewart MD,CLT-LANA,
and Saskia R.J.
Thiadens, RN
100 Questions and Answers About Lymphedema provides clear, straightforward answers to your questions about lymphedema. Whether it is your or a loved suffering from this challenging condition, this book offers help! Written by three experts in the field, with insider tips from actual patients, this practical, easy-to-read guide shows you and your family how to cope with symptoms, where to get the best treatment, and much more.This book is an indispensable quick reference for anyone facing lymphedema.
top of page
Resources For Supplies
Lymphedema Products
http://www.lymphedemaproducts.com/
We have found
Lymphedema Products to
be one of the most patient-friendly, helpful, competitively
priced internet sources for lymphedema products, with one of the
largest selections of garments. Academy
Bandages
https://acols.com/store.aspx
For
Your Legs
http://www.foryourlegs.com/
Compression Stockings
http://www.compressionstockings.com/
BrightLifeDirect
http://www.brightlifedirect.com/
Bandages
Plus
http://www.bandagesplus.com/
Metro On
Line
http://www.metromedicalonline.com/compression-garments.html
North American Rehab
http://www.northamericanrehab.com/
CancerCare.org
http://www.cancercare.org
Will provide lymphedema garments for women or men who
are unable to afford them
Cricketts Answer for Cancer
http://www.crickettsanswerforcancer.org/
Will provide lymphedema garments for women or men who
have been treated for breast cancer, as they are able
top of page
Page Last Modified
05/24/2013 |
![[ Voices of Lymphedema (front cover) ]](http://www.lymphnotes.com/up/img00521.jpg)
![[ Living Well with Lymphedema (front cover) ]](http://www.lymphnotes.com/up/img00382.jpg)
![[ Lymphedema Caregiver's Guide cover ]](images/img00594.gif)
